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Posts Tagged ‘art’

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Do you remember this?

Mad Paris Jolly

Well I don’t but I still love the blog post. As humorous accounts of dissociative fugue states go, I think it’s possibly one of the best I’ve ever written.

There’s lots I could say about that post, I could tell you how angry I am that even though fellow multiples all over the internet spotted it and correctly identified it for what it was my ‘care’ team at the time continued to be oblivious to the bleeding obvious- even when I very kindly pointed it out.

I could tell you how glad I am I wrote it as it has been read many times since and has helped immensely in seeing what was really going on for me.

I could tell you how disappointed I am that a literary agent didn’t stumble across my beautifully crafted piece, browse the blog and negotiate me a six-figure book deal with a major publishing house.

I could tell you that now I know (and I know I know) I have DID the trip to Paris makes perfect sense, even if I still don’t know who went or why.

What I want to tell you is that I didn’t go to Paris this year.

For reasons unknown I hate ‘my’ birthday and it’s clear from what happened this time last year that the birthday is a major trigger for me- Paris was just the start of a period of several intense crises, another trip to the bin and a further decline in my mental health. I daresay at some point during  my long therapeutic journey I will discover why I hate the birthday so much but it was enough this year to know that I did so that I could ready myselves to cope.

This year, the birthday passed without any major mishaps. Those of you who know me elsewhere will be aware that there was some preparation involved and I’m very grateful to you all for understanding and doing what you did. Some of you will also be aware that the birthday weekend had a number of added complications and some of you will know that I found it necessary to drink myself into a nice safe coma on two consecutive afternoons.

But I didn’t run away to Paris and I didn’t end up in the bin.

Frustratingly I’ve lost count of how many sessions I’ve had with the <?> therapist but it’s really not that many, around 16 maybe? I was going to start the next sentence with “in those 16 sessions I have made more progress than…” but I don’t need to compare it, you’ve read the blog.

In those 16 sessions- I have made progress

It’s a slow progress and sometimes it’s almost a kind of inverse progress but having spent my entire time in the MH system so far deteriorating, I’m delighted.

The bloody, painful, distressing, protracted battle with NHS Fife for the ‘right help’ was awful but I’m so glad I did it. The ‘right help’, the <?> therapist isn’t somehow magical, she just knows what she’s doing and what she’s done is help me to see that though my life is often painful and difficult, I have the skills and tools I need to keep going. Accessing these skills can be difficult, frustrating, exhausting, frightening and confusing. The right skills for the occasion aren’t always available, they are often not willing to do what they need to do, the wrong skills sometimes volunteer but they are there- all of them.

I have multiple opinions on multiplicity, having DID is hard for so many reasons and I still think if I could choose I’d choose not to have it.

I’d choose not to have needed to have it.

I’m glad I do have DID.

Only a multiple could cope with multiplicity. We have all the skills we need to do what we need to do, all the knowledge, all the experience, courage, tenacity, compassion, empathy, curiosity, humour and emotion. We are the ultimate self-contained, self-help units.

Now I have the right help and guidance I’m gaining confidence, learning about my condition, learning about myselves. I’m often uncomfortable with what I’ve learned, but knowledge is power and having spent the last two years or so feeling increasingly powerless and hopeless it feels good to get some of that power and hope back.

I checked Google calendar- it’s only been 14 sessions….

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Two years ago today I wrote this blog post

Ever wish you hadn’t asked?

Some time last year that post was edited and the link within changed- the link was originally to the Wikipedia entry on DID (which incidentally I think is rubbish). I know why it was changed and for the purposes of this post it doesn’t really matter. What does matter is that for two years I’ve known I had DID, the nature of DID means that I didn’t always know I had it and often didn’t think I had it- but I do and I’ve known for a very long time.

This post is dedicated to all the psychiatrists, psychologists, nurses & doctors (and there have been many) that have met me and treated me in those two years; I know many of them read the blog (though strangely they never leave comments). Even if you’ve never had the privilege of being involved in my ‘care’ if your profession brings you into contact with human beings, you may learn something too so please read on.

I can’t believe you all missed it, it was hardly subtle and I did, very kindly point it out on a number of occassions. You all need to learn about dissociation and dissociative disorders, you all need to find the courage, humility and confidence to do what’s right for those in your care. If you don’t know what you’re doing- admit it and find someone else who does. Listen to your patients, accept what is true for them, however distasteful, frightening and anxiety provoking it is for you. Put your egos to one side; ignore the flawed politics of the system you represent, stop damaging people who have been damaged enough, admit you got it wrong. If your manager/colleagues/profession are unsupportive- call them out on it, stand-up for yourselves, stand-up for your patients.

It’s too late for me, the damage caused by your mistakes is huge- but there will be others and you owe it to them, to your profession and to yourselves to ensure you don’t do to them what you did to me.

Don’t make anyone else have to fight the way I had to fight to get the correct diagnosis, care and treatment- for that fight was very damaging. Don’t assume that you know more than your patients, for all your qualifications it is the person sitting opposite you who is the expert on their own mind. Listen, believe and accept, if you can’t or won’t, have the decency to find someone who can and will. I hope every one of you has learned something from me and I hope some of you will go on to learn more in order that you can do your job and do it well.

You hold peoples lives in your hands, you have great power- but always remember what Spiderman said……. or Voltaire if that’s your bag, he said it too but Spiderman says it better.

A multiple never forgets

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There is so much preamble I could put here, but I’m not going to. I’m so relieved that I got this project out of my head and onto paper before “that” feeling was gone, it’s taken almost 23 hours of almost solid work. So lots of colouring in, very little sleep, very sore hands, some scanning, lots of little niggling imperfections but here is is, my latest project. Please leave comments- I will reply- probably up until around Thursday or Friday when I will no doubt slide into my pit of black sludge again………

All images and in fact everything on this blog subject to copyright, don’t steal my shit.

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