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Archive for the ‘Internal Communication’ Category

So much can happen in such a short time when your personality is not just fragmented but completely obliterated, compiling a blog post that says what needs to be said, what I want to say yet at the same time doesn’t reveal too much is extremely difficult.

The need to tell a part of the story is still there so the blog is still here.

The drive to write, to communicate, to educate, agitate and entertain is still there and so the blog is still here.

I am still here so the blog is still here.

I tried very hard not to be here, I pigeonholed myself and decided early on I was merely a ‘fragment’ or ‘function’ and kept my head down. It took me a while to figure out that perhaps fragments or functions lacked the ability to pigeonhole themselves but I continued to do it anyway. I’ve hidden, not spoken but continued to listen, others with whom I share a life mind and body were more than capable of doing what I did. I resisted sentience, resisted existence as my increasing awareness that the metaphorical scars I bear are similar to the scars of others with whom I share a life, mind and body was too painful. It was easier for me to believe I was created to do one thing and wasn’t created as the result of trauma. No part of a system of dissociated identities chooses to exist, whilst I can’t deny in terms of having all bases covered we’ve done a good job- from a pathological point of view this particular system of dissociated identities is bad news.

Those of us with DID are never short of internal conflict and arguments with ourselves are frequent, the relatively short length of time it takes to get washed and dressed in the morning can see several arguments over what to eat, drink and wear. There have been many conflicts since the last blog post was published but one particular one is causing a large amount of confusion.

I don’t suppose we’re unique in that there is a tendency to look forward, to seek answers about what the future may hold. I suspect this is largely as our pasts are unknown and the present is often unbearable. I don’t know how often the <?> therapist has been asked “how long will this take?” but I do know she’s never quantified it and I also know where the answer was once “years” then “a long time” and is now “a very long time”. Events of the past few weeks have painted a grim picture of what the future may hold, there are a number of reasons for this- most of them not for sharing but one reason is the impact of our own ‘investment in separateness’ according to this paper it’s a very negative thing. As terminology I’m uncomfortable with it, it’s a judgement laden description of something that’s complex and convoluted.

We never chose to become separate, to exist- our separation happened as we fought to survive, there’s a conflict there over whether to marvel at the abilities of the human mind or wonder if it might have been better not to survive. That’s not a thinly-veiled statement of intent or suicidality, just a fact. I don’t imagine there are any people with DID who don’t have at least one part hell-bent on ending their own lives- it’s almost a rule of multiplicity. Life dictates that we continue to survive and therefore our continued ‘investment in separateness’ is unavoidable.

Events of the past few weeks proved extremely destabilising and there was complete breakdown in communication. The past few weeks have been busy, confusing and often harrowing but as is the way with DID most of what goes on, goes on internally, underneath a benign, functioning exterior. You would never guess we’d fallen off the relentless treadmill of existence and I don’t think I will ever understand what drives the willingness to get back on the bloody thing- but get back on it we have.

Thanks to our investment in separateness we possess the skills necessary to keep going, to maintain that benign, functioning exterior. It’s the season for cabinet reshuffles but what was required was a complete system reboot. Those separate individuals we have spent 37 years unwittingly investing in have proved to be essential in making the necessary changes to ensure that the benign, functioning exterior remains in place.

As is often the way the grimness of existence has had a few brighter moments, I’m not sure the following exchange would win any prizes for internal communication or indeed compassion but it did cause a number of laughs, laughs that have been largely absent for some time.

“look, I know you’re suicidal but you’re a multiple and you know the minute you’d swallowed the pills, rat poison or whatever- some smart arse would phone an ambulance and our miserable little lives would be saved again. If it was just you and me I’d get you a glass of water to wash them down. It’s crap and I know you’re miserable but I assume you know how to work a fucking hoover?”

As soon as I’ve finished writing this I guess we’ll find out. I’m going back to my hooverless pigeonhole for a while, I’m many things but I don’t hoover.

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The last thing I feel like doing right now is writing a blog post but I read a letter this morning from one of the people who share my life/mind/body, that letter said many things one of the things it said was

“Please keep blogging, there are loads of you who can do it and if you don’t we lose our story, her story.”

She’s right and I know how important the blog is to her, to us all. I know who the letter is from so it was no surprise to read the “damned by faint praise” follow-up to the request to keep blogging

“Some of you are ok at moderating comments”

I’ve never moderated comments here but I will try, though the author of the letter may appear to do it herself, probably at 3am as is her wont. I’m so grateful for the ability we multiples have to sleep internally as I’m really not a morning person.

That letter was an emotional rollercoaster, it made me laugh and cry, it offered many helpful hints and tips and had a number of trademark requests and demands. The letter could only be from one person, I know her well and many of you do too. I know she’s gone silent externally and I know many of you miss her, I miss her too.

I’m not very good at explaining DID and I can’t make diagrams with MS Paint, besides the technical bits don’t really matter, what does matter is that someone I know and love is really suffering. As is the way, it’s a hidden suffering and I’m sure at some point when she reads this she herself would find it funny that whilst she was marauding around being floridly mad yesterday, someone else was using the body to do the hoovering.

It’s painful to watch someone you’ve known and loved for a long time go through so much distress. The first instruction in her letter was

“Don’t be nice to me”

Denial used to be my thing, I’ve written about it here before. I denied we had DID for a long time, I denied we had a history of trauma for a long time, had that denial challenged in a tangible way but then denied it again anyway. I’m done with denial, I know and love someone who is so badly and cruelly damaged that if she even felt safe enough to accept she had a physical body would find being liked, being cared about physically painful. I don’t know how someone ends up like that or why but I’m furious and heartbroken that someone can. I’ve redirected my need to scrutinise every little detail and contradict all the evidence away from us and our history, I became the nightmare garage customer for a while. The stupid car needed a big repair, I dissected the quote, questioned every little detail to make sure I wasn’t being ripped off. I know nothing about cars but you can be sure by the time I dropped the stupid car off at the garage I was a veritable Vauxhall Corsa timing chain expert. We all know we’ve done our jobs well when individually we’re greeted with

“Oh, it’s you…..?”

People may not be able to tell the difference between us but very few are left in doubt about our skills.

The author of the letter doesn’t believe it and can’t see it but for all the skills in our system, hers are probably the most valuable. She thinks she’s done something wrong, thinks she’s defective, she is in fact highly effective. She did what she had to do to survive but she added several flourishes that turned her into one of the most fascinating, beautiful individuals I have ever had the honour to share a mind/life/body with. I will do anything I can to help her, if that’s writing a blog post or even being ‘ok’ at moderating comments then I’ll do it. That’s why I’m here, that’s why we’re all here- to help each other and it’s just as well we are.

There’s the traditional “wrong kind of ill” paradox here, I don’t think we’ve ever had more distress and ever been more unstable than we are now but you can’t tell by looking. We decided this week to stop seeing the Fantastic CPN, at least for the time being, she’s a wonderful woman but ‘help’ from those who don’t know our system and who won’t, can’t or won’t allow themselves to ‘get’ DID is unhelpful, unsafe. We’ve been damaged enough.

We have 3 hours a week with the <?> therapist (and several emails/texts, I would hate to be a multiples therapist) and currently those three hours are all given over to one person, one part of [number I will never reveal], we may have a range of opinions on the <?> therapist- from “who?” to mistrust, suspicion all the way to ‘vehement hatred’ but that one person for those 3 hours a week feels safe. I’m choosing to be grateful for that rather than fly into a rage about the shocking lack of resources for people with DID in this country. Besides, flying into rages is someone else’s job.

Addressing lack of resources is also someone else’s job.

I know what my job is at the moment and I’ll keep doing it for as long as I have to, I have no end-goal, no great ambition other than to see those I share my life/mind/body with are ok.

The letter ended with

*very sad face*

I wept and made a mental note to check Amazon for an emotional dictionary, she really is stretching the definition of ‘sad’.

The letter’s signed

[redacted]

Xxx

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I’ve read yesterday’s blog post, responded to comments and been smacked hard in the face with the mental stick.

Nobody helped me write that blog post- those blanks I hoped to be filled weren’t filled. I sometimes blog individually as do other parts (you may have noticed) and many posts are more of the ‘compilation’ type, a round up of individual events, experiences, thoughts and feelings pulled together by someone with a talent for writing and diplomacy. Unusually, no other part blogged in my absence, there is a veil of secrecy around my lost week; I’m hiding something from myself.

Internal communication whilst not brilliant is good enough that I know the information about my lost week is there somewhere. I’m still not sure I want to know what happened or why but I get the impression that even if I did, nobody would tell me. It’s clear whatever happened had a knock-on effect and unsettled my various selves, it’s clear I was worried about myself and it’s obvious I am now eyeing myself suspiciously.

I hate saying things like that as it makes DID sound complicated- it’s not, I’ve made a diagram to illustrate-

Click on it, it looks far better in full size.

I know there’s ‘something up with me’ and whilst I don’t know what caused my week of mentalness I know what that something is. I don’t want myselves to know what it is though I know one of them does.

I know what to do about my something that is up, I’ve done it before and consider myself something of an expert but this time I’m having to do it alone and I’m scared, lonely and confused. Last time I did it I had [number I will never reveal] amazing, intelligent, strong, compassionate, courageous people to help, this time I’m alone. My head is suspiciously quiet other than the lone voice, from the nonchalant whistler (whom I do my best to avoid at all times as her particular set of skills scare the fuck out of me)….

[redacted], stop playing with MS Paint and writing blog posts and do what you need to do

I don’t want to. I’m too scared, that smack in the face with the mental stick was too hard and too painful. I’ve astounded myself with my useless ability to take mentalness to its limits and I’m not happy.

Which for me means that delirious happiness can’t be far off. I think I’ll continue being avoidant for a while longer, it’s taken 37 years to get here and in the absence of any of myselves expressing a desire to off themselves anytime soon, I’m guessing I’m not going anywhere for a while- well physically anyway.

This is hard, DID is hard, too hard.

That sentence was a test, when I start with the “it’s too hard” I usually get rescued, switch and someone who finds it all a bit easier comes along- nobody else has.

Bitches….

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To sum up the weekend-

60mins + 30 mins = 90 minutes

- how much sleep I got on Saturday night, when I woke and checked the clock at 11.30pm I was sorely tempted to smash it into my face repeatedly until I was unconscious. I wept pitifully for a while, lay in bed until 3am listening to the thoughts of many and feeling a little hard done-by then I got up. Obviously lack of sleep is nothing new to me but I had dared to hope that the days of almost no sleep were behind me.

5 fish – 5 fish = 0 fish

- the number of fish the 7 year-old caught on Saturday when I decided to introduce him to blood-sports and take him fishing. In spite of failing to land anything the 7 year-old seemed to enjoy the experience, he even managed to overcome his ‘sensitivities’ and handle bait. Given his extreme squeamishness I think it’s probably for the best he wasn’t lucky this time.

100bpm + 80bpm = 180bpm

- my average heart-rate during the hour I spent on the harbour with the 7 year-old, a child who embodies “perpetual motion” and occasionally “dyspraxia”. I think I may need to get him a life-jacket for future fishing trips- just in case that theory about a finite number of heartbeats is correct. Two more fishing trips and I’ll be dead.

12 arms – 11 arms = 1 arms

- the number of arms the 7 year-old claimed to have had broken by the 15 year-old. The children decided on Saturday that they hated each other and a day of bickering, shrieking and moderate violence ensued. I’m sure this was not unconnected to the fact that the 15 year-old was forced to wake some 6 hours earlier than her preferred time in order to attend her appointment with the hairdresser. I left them to it, they weren’t armed (though I considered giving them weapons at one point to bring matters to a speedy resolution) and there’s a hospital five minutes up the road.

1 arm – 1 arm = 0 arms

- the number of arms the 7 year-old actually had broken. I didn’t even bother to check when he initially made the claim, he came to find me some five minutes later, appearing jubilant, I suspect he won that particular round.

1 + 1 = 2

- the number of serious problems with the stupid car that I am now unable to ignore, it often fails to start at all and now 9 times out of 10 the key won’t even turn in the ignition. We have a skills gap, none of us are mechanics. I will simply have to break out the magic Barclaycard of power and send the stupid car to a garage.

25mg ÷ 5mg = 5mg

- the amount of Diazepam I took on Sunday in an attempt to get something resembling sleep. Old habits die hard, it’s been a while and it’s indicative of a general “things are a bit difficult” feeling at the moment but it did the job and for 2 hours I was oblivious.

1 x 12 = 12

- the number of teaspoons we own and coincidentally the number of teaspoons that were waiting to be washed. Teaspoons are a kind of benchmark for washing up in this house- when they run out it’s time to address the state of the kitchen. Having no clean teaspoons was not as problematic as you might think- there was so much washing up and general debris on the worktops that there was no room to make a cup of tea anyway. The dishes are now washed and the worktops clear, I’m considering buying some more teaspoons.

1 x ∞ = ∞

- the number of problems at the moment. It’s often the way, some are small, some are big and some are massive. It’s caused a kind of ‘stalling’ and almost a complete lack of internal communication as individual parts mull over their own problems and how they want to tackle them or indeed ignore them completely.

3mins + 40secs= 3mins 40secs

- the average length of a track on the new album by Two Door Cinema Club- Beacon. It’s not due for release until next month, I’ve listened to it and it’s ok but I’m glad I didn’t buy it. I’ve yet to give it the magical second listen so my views may change, I’ll be sure to keep you updated.

300 fucks – 300 fucks = 0 fucks

- the number of fucks I give right now, right this minute. There’s no lack of very obvious signs that something is very seriously wrong but thanks to my amazing powers of dissociation it needn’t be a problem, which is handy as I have much to do and no time to be mental.

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I can’t see properly- sometimes. I used to wear glasses to correct astigmatism; sometime in 2010 I stopped wearing glasses and also became the “first person the optician had ever met in his career who has spontaneously cured their own astigmatism.” I spend an inordinate amount of time squinting, reading through one eye or just not being able to see very far or very well.

I’m allergic to lilies- sometimes. I often ‘forget’ and buy them anyway, I then find myself wondering why my face is swollen and I’m wheezing a couple of days after bringing them into the house. I’m also allergic to kiwi-fruit, bananas, latex, rats, lanolin and pineapple- sometimes. I err on the side of caution and assume that I have the potential to be allergic to anything so always keep a supply of anti-histamines in the house. Using products from Lush in the bath is like playing anaphylaxis roulette.

I have terrible eczema- sometimes. My eczema has defied explanation at various stages over the years, it appeared to be linked to hormones for a while- but then it wasn’t. It appeared to be due to allergies for a while but then it wasn’t. Some of the vast array of treatments I have been prescribed worked- sometimes.

I found out in August 2011 that I have curly hair- very curly hair- sometimes. I mentioned this to someone involved in my ‘care’ at the time; she asked if I simply hadn’t noticed I had curly hair- for 36 years- as I straightened it. I’m not sure when GHD’s were invented and I know my recall of anytime previous to right now, right this minute can sometimes be sketchy but I’m pretty sure the explanation is not that straightforward.

I can explain all of these physiological anomalies in a very straightforward way- I have enough system knowledge to tell you which parts have bad eyesight, which parts are allergic to lilies, which parts have eczema, which parts have curly hair- but I’m not going to.

What I can’t explain is why and that frustrates me. I am a logical person, I like cold, hard, quantifiable facts- this makes me curious, analytical and sceptical. The physiological anomalies of dissociative identity disorder really challenge me. I’ve looked for information, I’ve found a lot of fellow DIDers sharing similar experiences but I’ve found very little science to back it all up. I like science.

I’m tormented by my natural, logical nature as I know on one hand I can explain the weird things in terms of ‘who has what’ but I also know, that even though it doesn’t feel like it and even though I would argue it wasn’t the case 90% of the time- there is only one of me and I only have one body.

The weird things are also difficult to talk about and I’m very reluctant to offer anything regarded as ‘fanciful’ that will add fuel to the ‘does DID exist’ fire. I would never have believed any of these things either- until they happened to me. Those of you who have been reading for a number of years and indeed those of you who read who have known me in real life will know I have no reason to lie.

I am forced to simply accept the physical changes between identity states in dissociative identity disorder just ‘are’. I have trawled the internet for information and found very little, partly as I’m constrained by Google scholar and have no journal subscriptions so am reduced to reading abstracts which perhaps pick up on one key word in my search. I have other theories as to why there’s very little research into this fascinating aspect of DID. I can’t imagine that many of us would make very willing test subjects, we’re all different but our general aversions to being asked questions and the medical profession probably makes us poor participants in research. There are no drugs to treat DID, in the absence of big-pharma being interested there are very few revenue streams for funding research. What research there is tends to be on the physiological changes associated with trauma or differences in memory between identity states. I read a lot, I’m an information junkie, for the longest time this was done in a tireless pursuit to somehow ‘prove’ to myself I didn’t have DID- I never found what I was looking for.

Writing this is difficult, not least as I can’t see very well. The obvious answer is to go to the optician and have my eyes tested but for the time being that is impossible. Eye-tests involve close proximity to another person, being in darkness, extended periods of eye-contact and being touched- it’s far too triggering. Besides how would I ever find an optician willing to accept that I might need glasses- sometimes and that indeed I might need three different prescriptions- sometimes.

I’m fascinated by myself and by DID, in many ways I’ve fulfilled one of my dreams by finding something that can hold my interest and satisfy my pursuit of knowledge. Right now I’d settle for knowing why DID is so physically exhausting as it’s only just past 8am and I’m so tired I could cry.

I do cry- sometimes.

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Nothing happened yesterday so I’m still fine.

I’m still coping, it still looks good.

It’s as though, when the 7 year-old returned home, I faced a choice-

Parent

Or

Have DID

Obviously this wasn’t a choice I could make and as with all things for those of us with DID, the choice gets made for us. I can see what’s gone ‘wrong’ for want of a better word, what happened wasn’t a wilful mistake, it was a reaction. The way things are now is working; yesterday even included some fun activities, such as-

  • Very brief visit to a fruit farm
  • Watching Mama put petrol in the car
  • Playing Lego Star-Wars on the Wii
  • Grief counselling (he didn’t save his game)
  • Sibling rivalry- complete with screaming
  • Watching videos of Brown Recluse spiders on YouTube
  • Freaking out about sweetcorn

I can deal with all of this- and more, I can remain calm and appear normal the entire time, nothing gets the job done quite like dissociation. It works well for the children but It’s not sustainable.

I’m exhausted and that constant, low-grade pain that appears to have been gifted as some sort of bonus with DID that I’d usually be able to ignore completely has shifted up a notch. I’m horrified at how rapidly shitty “coping mechanisms” (why we call them that when they are invariably methods employed when we’re not coping is a mystery to me) used in the past have tried to creep back in and saddened by how difficult I’ve found this weekend so far.

I’ve been buoyed by the messages friends have continued to send, here and elsewhere, our resident comment moderator has been allowed to sneak out in the wee small hours to reply- that connection is vital and I’m grateful to those of you who recognised that even when we’re not allowed to talk, we’re allowed to read. You’re all very special and very missed, the internal pining-o-meter is off the scale

The silence is making me desperately unhappy and the external silence is no longer reflective of the state of things internally. I’ve never been so glad that you can’t tell by looking and again, I’m grateful for dissociation as this has allowed me to parent seemingly unhindered by the inner turmoil. I have a million thoughts but very few words, I miss my words.

If nothing else, this weekend has dragged me out of the creeping denial that was setting in again and that’s positive though painful.

I won’t deny that things are incredibly difficult at the moment but as ever my natural curiosity and love of learning has provided a distraction. I don’t always like what I’m learning but I do manage to pique my own interest often enough to make it all a bit less shitty for a little while. My low emotional tolerance and high distractibility have been assets this weekend.

I have an appointment with the <?> therapist tomorrow and I’m awfully glad I do. I’m confident that between us we can come up with some things that will help make the current situation not better, not even ok but just less de-stabilising. At the moment I’ll settle for regaining the courage and confidence in my skills to face coming home again after the session.

I have some new practical issues to face tomorrow. In order to get to therapy on time I have to leave the house at 7.30am, half an hour before the 7 year-olds holiday club thing opens. I’ve asked the 15 year-old to get up some 7 hours before her preferred rising time and mind her brother whilst I’m out. She’s agreed to do this but has yet to be persuaded to go to the extra effort of washing dressing and delivering the 7 year-old to his holiday club thing. So I am a little concerned that the current need to crash out on the bed for anything up to three hours in a switchy, drowsy, head-noisy haze after a therapy session will have to be ignored in favour of a return to coping.

So as ever, I don’t have my troubles to seek and the pace of life just feels relentless at the moment, there’s never a dull moment with DID.

I’d love some dull moments.

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I don’t know if I’ve always hated weekends but I know I’ve always hated them since acute mentalism arrived. There are many reasons to hate weekends, that fluidity of time, lack of structure and routine leaves me even more bewildered than I usually am. Weekends bring with them an expectation that things will be different in some way, better in some way- everybody looks forward to the weekend.

You don’t get time off from being mental, we work 7 days a week and are just as likely to be mental on Saturday as we are any other day of the week.

Now that the 7 year-old is home the weekend looms before me  his expectations that it will be somehow different, somehow better have to be respected, he’s not mental. Though slightly better than I was, I’m still the world’s worst sleeper and the 7 year-old is 7 years old so long-lies and lazy days are ruled out. The days begin early and are long.

I’m still stuck in coping mode, it’s going well and things that need done are getting done. One of the dangers of being stuck in coping mode is that you start to feel like maybe you did make it all up; maybe you’re not mental anymore, maybe you were never mental in the first place. After a few days of coping one begins to feel somewhat invincible- in relative terms. So as I look at the weekend and all that time to fill, all that time to spend with the 7 year-old I start to think of all the answers to the question

“Mama, what are we going to do this weekend?”

I think of the things we used to do- trips to museums, swimming, days at the beach, trips the cinema, long walks and picnics in the forest, gardening, shopping and I think for a moment “we could do any of those” and then I remember.

We can’t.

I’m fine.

Fine until something happens.

I don’t always know what that something is or is going to be. I risk-assess every potential activity and rule them all out. I’m not being risk-averse, I’m not wrapping myself in cotton-wool, I’m accepting my limits. I’m laden with guilt that my limits become the children’s limits too but for now, I accept that it’s better for them not to be taken swimming rather than be taken swimming by someone who probably wouldn’t make it through a trip to the swimming pool without several public meltdowns.

Obviously entertaining children can be done at home too; the 7 year-old is content to play the Wii for extended periods of time. I’m not as happy to leave him being babysat by technology as he’d like me to be. I feel obliged to do something with him, to entertain him, educate him and engage him.

I’m rarely short of ideas for activities and never short of the required materials, we live in a house packed to the ceiling with art supplies, books, games and toys. I’m not bad at playing, in fact I suspect as 37 year-old women go I’m rather good at it. I’m very bad at allowing myself to play, playing doesn’t feel safe. My inclination is to direct or observe the 7 year-old at play, I can’t join in. The upside of multiplicity is that I can do this and do it well, the 7 year-old is none the wiser and enjoys my company and comments as he plays. Only I can hear the crying inside.

It’s 7.45am, Saturday morning, I have two days to fill and right now, I have no idea how to do it. I suspect I’ll switch to auto-pilot, continue coping and appearing well, entertain, educate and engage the 7 year-old and this weekend will be as weekends have been for some time- a complete gap in my memory.

Coping brings with it silence, there are no tweets, texts, emails or Facebook updates to track my days the blog is the only form of outside communication we have it is also the only form of internal communication we have. Silence weighs heavy, it feels safer but it’s an ominous safety- I am tip-toeing around inside my own head trying not to cause upset. I know there will come a point where I run out of cope, I’ve been awake most of the night wracking my brain, trying to think of ways to combine parenting with the mentals and so far have come up with nothing other than to continue relying on my amazing powers of dissociation and hope nothing happens.

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The 7 year-old has been at home since Tuesday evening, it’s now Friday morning. It’s going well, really well, too well. I’m coping- admirably.

Housework is done, shopping is done, meals are homemade, nutritious and served on plates instead of kitchen-roll, admin that’s been put off for months has been done, the TV is fixed. The 7 year-old has the new shoes, clothes and pyjamas he required (having him home has been much like adopting a refugee) I don’t remember completing any of these tasks but they’re done.

The children are well and happy, the 18 year-old is off to Dublin for a few days and called me this morning to let me know he’d arrived safely. The 15 year-old is in an extended huff with me as I had the audacity to tell her off for not coming home from the cinema until after midnight and going out without her phone. The 7 year-old is delivered daily to his holiday club thing, picked up in time for dinner, happy to come home, energetic and sleeping well.

Coping is not an ‘act’, I’m not ‘putting a brave face on’ most of the time I am genuinely absolutely fine and I feel fine. I’m so fine; I’ve even invented a new word to define my current phase-

Escoping

My favourite response to stress is always to escape, to run-away. Escaping takes many forms, I can run-away physically or to the bottom of a bottle of wine, I can escape for a while in a Diazepam-induced nap and of course there’s always the ultimate indulgence, the ultimate escape of suicide.

Coping is just another form of escape, it’s no less destructive than any of the other methods it just looks better. It’s not that I don’t want to cope but I have been propelled into coping. I initially thought that as the 7 year-old was out of the house between breakfast and dinner that I would have the peace to not cope for a little while and therefore do what was right for my mental health. I am stuck in high-functioning mode, I know it’s not helpful but I don’t know how to get un-stuck.

I look well, sound well and feel well. But I’m just not myself at the moment- a feeling that is nothing new to me. Those of you missing ‘me’ on twitter and Facebook, those of you I keep closest will know, I miss me too but I’m not allowed out to play.

In the past, the mental health professionals involved in my ‘care’ loved it when I was coping, I tried so hard to make them understand, to explain what was going on for me but they never got it. Now I have the right help, the <?> therapist I don’t have to worry that when she sees me on Monday, she’ll be relieved that I appear well, am coping and discharge me. I’m grateful for the selves-imposed rule that states someone must attend every therapy session unless it’s physically impossible to do so- even though I can’t rule out going to therapy on Monday and telling her I made a terrible mistake, I’m actually completely normal. This is not some flamboyant form of avoidance; it’s not that I don’t want to talk about it- I have nothing to talk about. I am ‘symptom’ free, able to do the things I need to do when they need done and my head is quiet.

The only thing worse than head-noise is head-silence.

I’m not better; I have merely turned my back on myselves in an attempt to cope with a stressful situation. I’ve stopped listening and stopped talking; I am the lid on the pressure cooker. Part of the admin that got done was renewing the insurance for the stupid car, this reminded me there was a blog post from around this time last year- it’s about my Weirdest Day Ever and talks a lot about coping.

Self-awareness can be a bitch.

I’ve re-read that post and this one too, I have so much insight I often wonder why I can’t heal myself. I suspect I am just too busy coping.

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I don’t think  I’ve ever detailed my virulent hatred of CBT (cognitive behavioural therapy) on the blog, I talk about it a lot on twitter and as some of my poor victims will know, I used to practise it there.

In times of distress I was always available to offer therapy, mainly along the lines of-

WHY ARE YOU DEPRESSED? OTHER PEOPLE ARE FAR WORSE OFF; SOME HAVE DEAD PETS. JUST STOP IT!

And

YOU ARE EMPLOYING MAGICAL THINKING. JUST STOP IT!

And

YOU’RE NOT BEING PARANOID. PEOPLE DO HATE YOU- BECAUSE YOU’RE RUBBISH. JUST STOP IT!

I’m in semi-retirement from my CBT practise these days, though rest-assured, should I spot you indulging in a little black and white thinking, mind-reading or catasrophising then I will point it out and insist you desist.

It may surprise you to know that I’m not a trained CBT practitioner, but I am a quick learner and managed to pick-up quite a lot during my own very brief dalliance with the technique. I had three sessions of CBT before I was declared too mental; I don’t remember much, in fact all I remember is

“WHY WOULD YOU MAKE YOURSELF VOMIT? THAT’S JUST STUPID”

Which as you can imagine was enormously helpful for someone who at the time was attempting to ‘regulate their emotions’ by throwing-up every morsel of food she ate. I waited 9 months for some harridan in a maxi-dress (she may have been a psychologist) to berate me for being mental. I’ve never been so glad to be declared ‘un-helpable’ in my life, being discharged was a gift.

CBT was never going to help me; I’m quite capable of berating myself, I don’t deny I sometimes indulge in all the common cognitive distortions but I’m a multiple so I also know when I’m doing it, why and what to do about it. I can administer CBT to myself. It doesn’t make me any better or help at all in any way but I know I should keep doing it or everything will go completely wrong and end in disaster. Furthermore it will all be my fault; I know others will blame me for everything as they all think I’m rubbish anyway.

There is one psychotherapeutic technique with a cognitive basis I don’t despise completely- reframing. I love a good reframe. I often reframe my days in order to make myself feel better; I’m quite the Polyanna and on balance, probably wear my rose-tinted spectacles as often as I wear my shit-tinted ones. At this stage I probably would lose the will to live by 10am most days if I didn’t paint everything with rainbows-

Forget an entire day- it must’ve been rubbish anyway.

Got lost in Tesco- accidentally found the stationery aisle.

Haven’t been out of the house all week- didn’t run away to Paris/Newcastle.

Drank too much wine- didn’t mix with benzos.

It’s a useful technique but there is a danger that a reframe can become a wanky platitude. The two run very closely together, I’ve sketched a graph to illustrate.

I can also spot a reframe a mile away so often feel patronised and invalidated, sometimes this is justified. Back in the day of the frequent dissociative trips that ended in police involvement, MHAs, helicopters, trips to A&E and the bin etc the Fantastic CPN would always comment “but you came back and you’re ok”. I’m not sure what my response at the time was, these ‘trips’ left me confused, terrified and ashamed but the fact I was still alive was supposed to be enough to comfort me when it was quite clear I had completely lost control of my mind and my life. So reframing, whilst useful can also be a tricky balancing act.

The 7 year-old has returned home, earlier than I planned. I’m not entirely sure how this came about but I’m sure there’s a paper-trail somewhere. Today I finally have a man coming to fix the TV- you can’t have a 7 year-old child in the house with no working TV, well you can if you

a)     dislike children

and

b)     are happy to provide round-the-clock entertainment

I’ve mentioned before that this kind of situation, where I have to allow a stranger to enter the smallest house in the world is very challenging for me. I don’t imagine for a second that the TV man presents any real threat (other than to the bank balance) but I am crippled by hypervigilance.

I have extremely keen senses- all of them, they are my useless superpowers. I’m always on the lookout for signs of danger, be they real or imagined. I am permanently primed, ready to freeze, flee or have a complete meltdown at the first sign of peril. It’s not a good way to be, physically or emotionally- hypervigilance makes me mental, bonfire night in this house is probably similar in many ways to bonfire night in Battersea Dogs Home. I can’t just stop being hypervigilant and so, at times I hate myself for it.

I clearly needed some sort of reframe, so you can imagine my unbridled delight when I found this article that confirms that I am not only super-human but Spiderman. I have nothing to fear from the TV man, unless of course his name is Norman Osborn…….

click image to read article

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Last night the world, or at least my tiny view of it from behind the laptop screen was talking about the 4 Goes Mad season, specifically Ruby Wax’s Mad Confessions- hosted by the self-dubbed “poster girl for mental health” (or “poster girl for mental illness” according to her twitter bio), Ruby Wax.

I didn’t watch it, the TV is still broken and it’s still too difficult for me to contemplate having someone come into the house to fix it. I ‘watched’ Ruby Wax’s Mad Confessions on twitter, the same way I have ‘watched’ TV for some time.

Obviously this show wasn’t going to represent me, I knew that. I also knew that as it championed celebrity mentalism which I have talked about before here, I probably wasn’t going to like it. I’d read a bit about the show, watched Ruby’s interview on BBC Breakfast, watched some coverage from the 4 goes mad launch night and read some comments from Ruby in an article in the Independent- I didn’t like any of them.

I have nothing personal against Ruby Wax, I don’t know her and generally I applaud anyone who tries to battle the stigma surrounding mental illness but as I’ve said before, I don’t think celebrities are the right people to do this. I could take umbrage with her investment in the medical model but I can’t really be bothered. I could point out that she’s no longer bipolar and none of you seemed to notice- but I can’t be bothered. I could point out that Ruby has never spent time in the hideous pit of shitness that is an NHS acute psychiatric ward- but I can’t be bothered. I could point out that Ruby has never had to wait months, maybe years for the correct treatment- but I can’t be bothered. I could point out that Ruby has never been unnecessarily over-medicated- but I can’t be bothered. I could point out that Ruby has never had to apply for a mortgage payment holiday (long since expired) from her bed on a psych ward- but I can’t be bothered. I could point out that despite ‘confessing’ to being mentally ill, Ruby still has a job, in fact- extra jobs- but I can’t be bothered.

So last night turned out, as expected to be a rage-fest for me, not pretty but I had every right to be angry. I was angry at the content of the show and could sit here for weeks picking through all the bits that pissed me off. I’m not going to; I can’t be bothered. Ruby Wax’s Mad Confessions left me feeling more worthless, patronised and misunderstood than I have felt for a very long time.

What last night confirmed for me is a suspicion I’ve held for a while.

As I watched the reactions to Mad Confessions roll-in and watched some fellow mentalists and all the mental health organisations swooning over the ‘honesty’ and ‘bravery’ of the host and those featured, crowing about how this time, this time someone was really challenging stigma. This was it- she was going to be the one, Ruby Wax was our saviour. I felt an increasing distance from some members of my adopted community. It’s not just my rampant hatred of celebrity mentals that created this distance, it was more.

As I trawl around the madosphere reading blogs, tweets, articles, campaigns and press releases I’m frequently smacked in the face by

RECOVERY

I don’t like the word recovery and as a concept in its broadly accepted form it is meaningless to me. I’m not going to recover, DID is for life, if you meet me in ten years time I will still have DID, sure I’m hoping that there’ll be a lot less disorder by then but I will still be several different people in one body. This makes me unacceptable to many of you. This makes me unacceptable to society and mental health organisations. I’m not alone, this is not a situation unique to those of us with DID- though that’s my drum and I will continue to bang it. There are many mental illnesses from which people will never recover to an acceptable degree; some of us will be mental forever. I’m not some petulant recovery refusnik and I’m not playing “my mental is worse than your mental” (though if you want to fight about it I’d give you a good run for your money) but I think I have found one of the reasons I may feel that difference I talked about in a previous post.

I’m not striving for recovery. On a good day I’m living, the rest of the time I exist, I just keep on keeping on. Yes I’m in therapy and yes I work hard but I work hard to achieve a level of communication and cooperation with those who share my mind, life and body, I’m not working hard to get rid of them. This is not because I have some sort on ‘investment in illness’ or a desire to stay ‘stuck in the sick role’ this is because I am accepting of my condition and what it means for me.

When I briefly and reluctantly accepted I was bipolar (I still never believed it) I was applauded, acceptance is a big deal in mental health- after all it’s the first step to recovery. Now that I have fully accepted I have DID and also fully accepted that I’m not going to recover in a way that looks like recovery to others, I’m shunned. I’m treated like I have decided that no matter what I’m going to stay determinedly mental- forever. I go against the grain, I talk freely and openly here and elsewhere about my experiences with mental illness but there is something distasteful for some of you that I talk about working with it and not working to get past it. I’m not waiting for my meds to reach the right level, I’m not practising mindfulness techniques, I’m not going back to work, I’m not finding new hobbies to ‘distract’. I just am.

I’m letting the side down by not joining the cult of recovery, I’m not shouting from the rooftops “I WILL BEAT THIS!” I’m not laying a virtual trail of M&Ms to try and coax other mentals into doing what I do, into joining me on a righteous path of recovery and return to normality. I tell it like it is, I tell my story.

I’m not writing myself off, far from it. I have the potential to be awesome and I know it- but I will be awesome and mental. But I know that for some, I have gone too mental, taken it too far.

I’m not sorry.

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