Feeds:
Posts
Comments

Archive for the ‘emotions’ Category

According To Our Latest Findings- You’re Super

Posted in Anxiety, CBT, DID, Dissociation, Dissociative Identity Disorder, emotions, Fantastic CPN, hypervigilance, insight, Internal Communication, MPD, Multiple Personality Disorder, Spiderman, The Fear, The Smallest House in The World, Triggers, Twitter, Uncategorized, tagged , , , , , , on July 26, 2012 | 20 Comments »

I don’t think  I’ve ever detailed my virulent hatred of CBT (cognitive behavioural therapy) on the blog, I talk about it a lot on twitter and as some of my poor victims will know, I used to practise it there.

In times of distress I was always available to offer therapy, mainly along the lines of-

WHY ARE YOU DEPRESSED? OTHER PEOPLE ARE FAR WORSE OFF; SOME HAVE DEAD PETS. JUST STOP IT!

And

YOU ARE EMPLOYING MAGICAL THINKING. JUST STOP IT!

And

YOU’RE NOT BEING PARANOID. PEOPLE DO HATE YOU- BECAUSE YOU’RE RUBBISH. JUST STOP IT!

I’m in semi-retirement from my CBT practise these days, though rest-assured, should I spot you indulging in a little black and white thinking, mind-reading or catasrophising then I will point it out and insist you desist.

It may surprise you to know that I’m not a trained CBT practitioner, but I am a quick learner and managed to pick-up quite a lot during my own very brief dalliance with the technique. I had three sessions of CBT before I was declared too mental; I don’t remember much, in fact all I remember is

“WHY WOULD YOU MAKE YOURSELF VOMIT? THAT’S JUST STUPID”

Which as you can imagine was enormously helpful for someone who at the time was attempting to ‘regulate their emotions’ by throwing-up every morsel of food she ate. I waited 9 months for some harridan in a maxi-dress (she may have been a psychologist) to berate me for being mental. I’ve never been so glad to be declared ‘un-helpable’ in my life, being discharged was a gift.

CBT was never going to help me; I’m quite capable of berating myself, I don’t deny I sometimes indulge in all the common cognitive distortions but I’m a multiple so I also know when I’m doing it, why and what to do about it. I can administer CBT to myself. It doesn’t make me any better or help at all in any way but I know I should keep doing it or everything will go completely wrong and end in disaster. Furthermore it will all be my fault; I know others will blame me for everything as they all think I’m rubbish anyway.

There is one psychotherapeutic technique with a cognitive basis I don’t despise completely- reframing. I love a good reframe. I often reframe my days in order to make myself feel better; I’m quite the Polyanna and on balance, probably wear my rose-tinted spectacles as often as I wear my shit-tinted ones. At this stage I probably would lose the will to live by 10am most days if I didn’t paint everything with rainbows-

Forget an entire day- it must’ve been rubbish anyway.

Got lost in Tesco- accidentally found the stationery aisle.

Haven’t been out of the house all week- didn’t run away to Paris/Newcastle.

Drank too much wine- didn’t mix with benzos.

It’s a useful technique but there is a danger that a reframe can become a wanky platitude. The two run very closely together, I’ve sketched a graph to illustrate.

I can also spot a reframe a mile away so often feel patronised and invalidated, sometimes this is justified. Back in the day of the frequent dissociative trips that ended in police involvement, MHAs, helicopters, trips to A&E and the bin etc the Fantastic CPN would always comment “but you came back and you’re ok”. I’m not sure what my response at the time was, these ‘trips’ left me confused, terrified and ashamed but the fact I was still alive was supposed to be enough to comfort me when it was quite clear I had completely lost control of my mind and my life. So reframing, whilst useful can also be a tricky balancing act.

The 7 year-old has returned home, earlier than I planned. I’m not entirely sure how this came about but I’m sure there’s a paper-trail somewhere. Today I finally have a man coming to fix the TV- you can’t have a 7 year-old child in the house with no working TV, well you can if you

a)     dislike children

and

b)     are happy to provide round-the-clock entertainment

I’ve mentioned before that this kind of situation, where I have to allow a stranger to enter the smallest house in the world is very challenging for me. I don’t imagine for a second that the TV man presents any real threat (other than to the bank balance) but I am crippled by hypervigilance.

I have extremely keen senses- all of them, they are my useless superpowers. I’m always on the lookout for signs of danger, be they real or imagined. I am permanently primed, ready to freeze, flee or have a complete meltdown at the first sign of peril. It’s not a good way to be, physically or emotionally- hypervigilance makes me mental, bonfire night in this house is probably similar in many ways to bonfire night in Battersea Dogs Home. I can’t just stop being hypervigilant and so, at times I hate myself for it.

I clearly needed some sort of reframe, so you can imagine my unbridled delight when I found this article that confirms that I am not only super-human but Spiderman. I have nothing to fear from the TV man, unless of course his name is Norman Osborn…….

click image to read article

Read Full Post »

Multiple Mama’s

Posted in children, co-sleeping, communication, DID, Dissociation, Dissociative Identity Disorder, emotions, hugs, insight, Internal Communication, mother, MPD, Multiple Personality Disorder, NHS, parenting, single-parent, Skills, stress, tea, therapy, Told you it wasn't like Stephen Fucking Fry, Triggers, tagged , , , , , , on July 20, 2012 | 16 Comments »

Today I have been a Mama for 18 years. That’s technically not true; I only became “Mama” around 6 and a half years ago when my youngest son decided that’s what he was going to call me, the older children followed his lead. Previous to that, I’m not sure what my title was but my job was the same.

I have three children- an 18 year old son, 15 year old daughter and a 7 year old son. The children are generally happy save for their own individual neuroses; they are intelligent and good-humoured, curious, energetic, polite, creative, sociable in their own unique way and very loving.

My parenting style is eclectic though at times, probably best described as “haphazard” I kind of make it up as I go along. Cereal (branded or generic) is a legitimate dinner at least once a week, baby wipes are an excellent substitute for a bath every other night, ketchup is a vegetable. 3 hours a day on the internet is “learning”, swearing is ok if it is grammatically correct and used appropriately. Discussion at the dinner table is actively encouraged even if it is about world hunger or decomposition- which as anyone with a 7 year-old son will know; it often is. Bedtimes can be fluid if I’m not craving peace; curfews are negotiable if the text messaged request is funny enough. Later-on drugs can be experimented with as long as they’re not chemical or addictive, getting drunk is ok as long as you stay safe and don’t get “fall down, piss yourself drunk”. A screwdriver is a legitimate toy, breaking things is “science”, woodlice are pets. Food colouring is for icing, mashed potatoes and baths. Beds are for sharing, books are important but can be annotated if desired, magnifying glasses are essential as are torches. School is crucial and should be approached with enthusiasm and the courage to question, further or higher education is optional. Individuality is cherished, love is unconditional.

In return for my eclectic parenting style I have 3 rather wonderful children, all popular with peers, all healthy, all able to come to me when necessary as far as I know- as far as any mother can know I suspect, after all you don’t know what they don’t tell you. I know I’m not an ogre- the 18 year old is able to discuss his sexuality with me, the 15 year old trusts me with her secrets and friends, the 7 year old still thinks I am a walking encyclopaedia even though I have led him to believe that the answer to many questions is “magic” (accompanied by appropriate hand-gestures and “woo” noises).

I’d be lying if I said my mental health hadn’t affected my children, particularly over the last year or so. They have had to go through things and witness things no child should ever have to be subjected to. The one thing I know I will never forgive the mental health system for is the effect their mistakes and negligence had on my children. I obviously feel guilty about my own contribution to what the children suffered but I know I couldn’t help it. I also know I repeatedly asked those who should have helped me to help- it’s not my fault they didn’t.

Even outwith times of crisis and given that the illness I have, dissociative identity disorder (DID) doesn’t just suddenly appear in adulthood but has been present in some way throughout my life, my mental health has affected my children and my relationships with them from the start.

Today, July 20th 2012, I can only remember one of the ‘starts’, I currently have no access to memories of my children prior to 2005, it’s as though I wasn’t there.

I wasn’t there.

I have a metaphorical book of facts; I can tell you birthweights, the ages at which developmental milestones were met and have the odd anecdote but beyond that- nothing. I have many photographs of the children, sometimes they can help access a memory of a time, place or event but it is to my eternal sadness that there are very few, if any photographs of me and the children. I’m terrified of having my photograph taken, in the few photos that do catch me, I look terrified. I have no proof that I was ever there and in the absence of feeling like I was there, this is difficult. The children don’t have DID, they do have memories and they often share them. Their accounts of me are usually positive so I take comfort from that. I also know that whilst I may not be able to access my memories of the children- they are there and I’m hopeful that, in time, they will become my memories too.

There’s no doubt that my mental health has had many negative impacts throughout the children’s lives but I’d argue the positives from having multiple Mama’s outweigh the negatives.

I am able to share my children’s interests- everything from the 18 year-old’s love of trains and foreign languages, to the 15 year-old’s love of reddit and shoes, to the 7 year-old’s love of Lego and Spiderman.

I am a very accepting person, anything goes. I have a moral compass that spins freely. Nothing my children do is unacceptable, certain situations may need a careful approach; some extra thought but nothing phases me. I’m slightly challenged by the 18 year-old’s support for Scottish nationalism (with a capital N) but there really is no-one better for him to discuss it with and I’m optimistic I can convince him otherwise but equally happy if I can’t. I frequently annoy the 15 year-old with my general ‘enthusiasm’ for things but she knows that it can be used to her advantage- be this in shoe or pancake form. The 7 year-old can vomit on demand at the dinner table should I stray from his desired diet of processed beaks and feet wrapped in batter, served with bastardised potato shaped into smiley faces, animals or letters but he knows I love those smiley faces, animals and letters as much as he does. I don’t stress over the little things, meeting the 5-a-day requirement in this house often includes the consumption of  “imagination salad”.

Thanks to my amazing powers of dissociation I am excellent in a crisis, should you back-flip into the corner of a table and sever a blood vessel there is no-one better to accompany you to A&E. I am a calm, reassuring presence even when faced with spurting blood and general distress.

I am fiercely protective of the children and attentive to their physical, emotional and environmental needs. This means I am happy to demand a same-day GP appointment in the face of cross-examination and insistence that such a thing is impossible from the receptionist. I am quick to challenge a school “behaviour policy” that uses shame to try and elicit compliance and should the children desire a mural on their bedroom wall or fairy lights in the kitchen than that’s ok too.

I am a good Mama.

So why today am I sitting here, worrying?

I’m worrying because tonight I have promised to take the now 18 year-old out for his first legal pint- out, to a pub. I don’t need to tell you just how challenging this is, I briefly began to consider all the known triggers and stopped when I got to double figures. I daren’t even think about the ones I don’t know about. I’m confident that I will appear well, it may be the quickest pint ever but I’m sure it’s something my son will remember forever and I’m honoured he chose me to share this moment with him. I’m pretty certain that the situation will be so stressful I’ll have no memory of it at all and I don’t doubt that it will cause some internal distress, but I’m going to do it- that’s what Mama’s do.

I’m worrying because on the 3rd of August my youngest son will return to my care full-time, having spent the last 9 months or so living with his father. I have stayed in contact with him throughout this period and it was always my intention to have him home when I felt well enough. The choice to wait until I was well enough wasn’t mine to make so he’s coming home a little earlier than I would’ve liked, I am in no doubt that this is the right thing to do. I accept it will be challenging and I accept that my progress, which to-date has been consistent and rapid will probably slow as I try to combine therapeutic work with caring full-time for two children again.

I’m worrying because although I know I’m a good Mama, I’ve lost a lot of confidence in my skills, I share the role with several others.  They all have something to bring and all have contributed in some way to the amazing creatures the children have become. I don’t expect it to be easy but I know, in time, I will get that confidence back. In spite of everything I have three securely attached, integrated little people to love and call my own.

Well I say little people- the 18 year-old is 6ft 2 with size 17 feet, I can only hypothesise that his father was a giant or a clown- perhaps a giant clown? I have no idea and I suspect, given my track record with men that some things are best left dissociated.

Read Full Post »

Same Difference

Posted in Anxiety, depression, DID, Dissociative Identity Disorder, Eating Disorder, emotions, insight, insomnia, Internal Communication, labels, manic, mental illness, MPD, Multiple Personality Disorder, therapy, Told you it wasn't like Stephen Fucking Fry, Triggers, Uncategorized, tagged , , , , , on July 18, 2012 | 22 Comments »

I don’t fit, or at least if I do, I don’t know where. This feeling is nothing new to me; I’ve never fitted, always felt different. I suppose I should be grateful that at least now I know why?

I didn’t think I had a problem with being different, in fact I’m still not sure I do after all I can’t imagine I’d enjoy being normal. Just a quick reminder to anyone even thinking of saying or even just thinking “oh but what is normal anyway?” I don’t know, but I know what it isn’t. That question rates even higher up the irritation scale than any of the wanky platitudes, don’t do it.

When I went mental, I started to feel a bit like I wasn’t different anymore; I was the same as all the other mentals. But that’s just it, I am the same

as

all

the

other

mentals….

I have a lot in common with the depressed, the manic, the obsessive compulsives, the voice hearers, the eating disordered, the self-harmers, the suicidal, the psychotic, the delusional, the gender confused, the insomniacs, the narcissists, the anxious, the attachment disordered, the selective mutes, the substance abusers, the paranoid- I could go on…..

I can identify with everyone; I’ve been there, am often there and will no doubt be there again at some point. I suppose if we’re looking at transferable skills at least I can rest easy, safe in the knowledge that I have a promising future career in writing leaflets about mental illness?

I left a comment on a blog last week; it took me some 4 days of writing and deleting to actually click ‘submit’. My comment wasn’t anything controversial or even particularly interesting or important but it was different. The topic of the blog piece was labels- what we mentals call ourselves and are called by services. I’m a firm believer in self-definition but of course, for me this means selves-definition. My comment reflected this

I cut the comment short, I define myself in numerous different ways but I was feeling incredibly self-conscious about what I’d said.

So I feel different from other people like me, other mentals

I don’t fully understand why I felt so self-conscious, I’m not ashamed of having DID, I’m happy to talk about it. You may have noticed.

I feel like I ought to say “my illness doesn’t define me” but it’s simply not true. When your illness makes you believe you are more than one “me” it does tend to dictate how you operate.

I’ve felt uncomfortable within the Madosphere for a while, I don’t read many blogs at the moment and I comment on very few. Whilst I have something in common with everyone and can offer advice, sympathy and understanding in all and any situation, I shy away from doing so. I don’t feel unwelcome, far from it but I do feel very different and quite alone. The ultimate paradox of sharing your head/body/life with [number I will never reveal] people is that it can be incredibly lonely.

I know there are several people out there with DID, I read some of their blogs; I don’t even feel like I fit there. Why? What makes me so special? What makes me think I’m different from all the other multiples out there?

On paper, nothing. Whilst all multiples are unique, there’s a sameness about us too, we share similar experiences and face similar struggles. There are a few tangible things I can point to that make me feel out of place within the online DID community.

Other DID bloggers use different terminology to me, I can’t discuss this further as it’s triggering, therefore other DID blogs can be triggering for me. So I’m like the meanie of the madosphere, I have no blogroll and generally don’t follow blogs. I have some in my reader as then I can carefully choose when to read them. I tend to avoid using terminology at all, I slip in the odd technical description but my story-telling approach to blogging often doesn’t call for it.

Other DID bloggers share names, I nearly fled Starbucks in terror last time I went and they asked for a name to put on my drink (why do they do that?!). I can’t work out if my reluctance to share names is symptomatic of the denial that we had any for so long or indicative of my overall secretiveness. I’m happy, for the most part to hide behind the collective noun, it feels safer that way.

Other DID bloggers share system information, I am like the MI5 of the multiple world when it comes to sharing information. I think it would make me feel incredibly vulnerable and unsafe to detail parts of my system.

Other DID bloggers talk about therapy; I allude to it but can never imagine retelling a session. I’m not ashamed about what happens in session, I often don’t know and am in no doubt that it’s always overtly mental but I think that therapy is for me, whoever I may be on the day and the <?> therapist.

Other DID bloggers talk about trauma. I have no trauma. I know that’s the typical multiple response but I genuinely have no memory of trauma. Sure my childhood was less than perfect and I can remember a lot of the less than perfect bits- which suggests they don’t count as trauma, but more unhelpful additions to a psyche that was already teetering. I can’t imagine if I ever uncover any trauma *clings to denial* I’d want to share it outwith therapy though.

So I feel different from other people like me, other people with DID

I’ve done the sums and if I’ve correctly identified ANPs (apparently normal parts) and EPs (emotional parts) I am 63% normal or apparently normal anyway. So the majority of the time, I’m technically, apparently normal. Twenty minutes in a room with me however and it becomes glaringly obvious that in spite of the mathematical evidence, I’m not normal. In fact, you don’t even need to be in the same room as me, anyone who’s ever received an email from me will know that bits of apparent normality do not compound into something totally normal, indeed it has the rather opposite effect. Those of you who’ve been lucky enough to receive hand-written correspondence from me (always unsigned but you can tell it’s from me as you recognise the handwritings) will appreciate that whilst there’s no doubt I can be normal and often am, all the normal together or even just a few of the normals together at the same time makes something completely abnormal.

So I feel different from other people like me, normal people

I think I feel different because I feel different and have always felt different. It’s causing me some angst it’s fair to say, especially as I think I’d be equally angst ridden to find out I was just the same as everyone else.

Read Full Post »

Swiss Army Mental

Posted in #MadParisJolly2011, alcohol, art, birthday, blogging, book, communication, diagnosis, DID, Dissociation, emotions, insight, Internal Communication, MPD, Paris, Skills, therapist, Told you it wasn't like Stephen Fucking Fry, Triggers, tagged , , , , , , , , , on June 13, 2012 | 16 Comments »

Do you remember this?

Mad Paris Jolly

Well I don’t but I still love the blog post. As humorous accounts of dissociative fugue states go, I think it’s possibly one of the best I’ve ever written.

There’s lots I could say about that post, I could tell you how angry I am that even though fellow multiples all over the internet spotted it and correctly identified it for what it was my ‘care’ team at the time continued to be oblivious to the bleeding obvious- even when I very kindly pointed it out.

I could tell you how glad I am I wrote it as it has been read many times since and has helped immensely in seeing what was really going on for me.

I could tell you how disappointed I am that a literary agent didn’t stumble across my beautifully crafted piece, browse the blog and negotiate me a six-figure book deal with a major publishing house.

I could tell you that now I know (and I know I know) I have DID the trip to Paris makes perfect sense, even if I still don’t know who went or why.

What I want to tell you is that I didn’t go to Paris this year.

For reasons unknown I hate ‘my’ birthday and it’s clear from what happened this time last year that the birthday is a major trigger for me- Paris was just the start of a period of several intense crises, another trip to the bin and a further decline in my mental health. I daresay at some point during  my long therapeutic journey I will discover why I hate the birthday so much but it was enough this year to know that I did so that I could ready myselves to cope.

This year, the birthday passed without any major mishaps. Those of you who know me elsewhere will be aware that there was some preparation involved and I’m very grateful to you all for understanding and doing what you did. Some of you will also be aware that the birthday weekend had a number of added complications and some of you will know that I found it necessary to drink myself into a nice safe coma on two consecutive afternoons.

But I didn’t run away to Paris and I didn’t end up in the bin.

Frustratingly I’ve lost count of how many sessions I’ve had with the <?> therapist but it’s really not that many, around 16 maybe? I was going to start the next sentence with “in those 16 sessions I have made more progress than…” but I don’t need to compare it, you’ve read the blog.

In those 16 sessions- I have made progress

It’s a slow progress and sometimes it’s almost a kind of inverse progress but having spent my entire time in the MH system so far deteriorating, I’m delighted.

The bloody, painful, distressing, protracted battle with NHS Fife for the ‘right help’ was awful but I’m so glad I did it. The ‘right help’, the <?> therapist isn’t somehow magical, she just knows what she’s doing and what she’s done is help me to see that though my life is often painful and difficult, I have the skills and tools I need to keep going. Accessing these skills can be difficult, frustrating, exhausting, frightening and confusing. The right skills for the occasion aren’t always available, they are often not willing to do what they need to do, the wrong skills sometimes volunteer but they are there- all of them.

I have multiple opinions on multiplicity, having DID is hard for so many reasons and I still think if I could choose I’d choose not to have it.

I’d choose not to have needed to have it.

I’m glad I do have DID.

Only a multiple could cope with multiplicity. We have all the skills we need to do what we need to do, all the knowledge, all the experience, courage, tenacity, compassion, empathy, curiosity, humour and emotion. We are the ultimate self-contained, self-help units.

Now I have the right help and guidance I’m gaining confidence, learning about my condition, learning about myselves. I’m often uncomfortable with what I’ve learned, but knowledge is power and having spent the last two years or so feeling increasingly powerless and hopeless it feels good to get some of that power and hope back.

I checked Google calendar- it’s only been 14 sessions….

Read Full Post »

Helping The Help

Posted in #MadParisJolly2011, art, Awesome Psychiatrist, bipolar, blogging, communication, crying, depression, diagnosis, DID, Dissociation, DSM, emotions, Fab Psychologist, health, hospital, insight, Internal Communication, labels, Lovely GP, manic, medication, mental illness, MPD, Multiple Personality Disorder, NHS, psychiatrist, stickers, suicide, The Fear, therapy, Told you it wasn't like Stephen Fucking Fry, tagged , , , , , , , , , , on May 25, 2012 | 23 Comments »

Two years ago today I wrote this blog post

Ever wish you hadn’t asked?

Some time last year that post was edited and the link within changed- the link was originally to the Wikipedia entry on DID (which incidentally I think is rubbish). I know why it was changed and for the purposes of this post it doesn’t really matter. What does matter is that for two years I’ve known I had DID, the nature of DID means that I didn’t always know I had it and often didn’t think I had it- but I do and I’ve known for a very long time.

This post is dedicated to all the psychiatrists, psychologists, nurses & doctors (and there have been many) that have met me and treated me in those two years; I know many of them read the blog (though strangely they never leave comments). Even if you’ve never had the privilege of being involved in my ‘care’ if your profession brings you into contact with human beings, you may learn something too so please read on.

I can’t believe you all missed it, it was hardly subtle and I did, very kindly point it out on a number of occassions. You all need to learn about dissociation and dissociative disorders, you all need to find the courage, humility and confidence to do what’s right for those in your care. If you don’t know what you’re doing- admit it and find someone else who does. Listen to your patients, accept what is true for them, however distasteful, frightening and anxiety provoking it is for you. Put your egos to one side; ignore the flawed politics of the system you represent, stop damaging people who have been damaged enough, admit you got it wrong. If your manager/colleagues/profession are unsupportive- call them out on it, stand-up for yourselves, stand-up for your patients.

It’s too late for me, the damage caused by your mistakes is huge- but there will be others and you owe it to them, to your profession and to yourselves to ensure you don’t do to them what you did to me.

Don’t make anyone else have to fight the way I had to fight to get the correct diagnosis, care and treatment- for that fight was very damaging. Don’t assume that you know more than your patients, for all your qualifications it is the person sitting opposite you who is the expert on their own mind. Listen, believe and accept, if you can’t or won’t, have the decency to find someone who can and will. I hope every one of you has learned something from me and I hope some of you will go on to learn more in order that you can do your job and do it well.

You hold peoples lives in your hands, you have great power- but always remember what Spiderman said……. or Voltaire if that’s your bag, he said it too but Spiderman says it better.

A multiple never forgets

Read Full Post »

Something About Nothing And Sticky Butterflies

Posted in Butterflies, communication, DID, emotions, insight, Internal Communication, mental illness, MPD, Multiple Personality Disorder, therapist, Told you it wasn't like Stephen Fucking Fry, Triggers, tagged , , , , on May 5, 2012 | 12 Comments »

I am stuck

Being the paradoxical kind of girl I am my ‘stuckness’ is dynamic and fluid. It’s an ever-changing stuckness, a stuckness that shifts and moves. Much like everything else- it is confusing and chaotic. Confusion and chaos remain the only two constants in my dynamic, stalled, paradoxical existence.

I am the personification(s?) of the butterfly effect, I contain many butterflies and every one of those butterflies contains their own butterflies. I’m not particularly large as containers go so there are just too many butterflies to cope with.

I somehow have to manage all these butterflies whilst leading some sort of life, doing the things I need to do, do the things others need me to do. I feel completely defeated.

I’m assured by the <something> therapist that internal communication is the key to butterfly taming and I don’t doubt she’s right. The problem with internal communication is that it forces you to consider there may be something internal to communicate with.

I know there is, I know there are several ‘somethings’ to communicate with, not all the somethings agree, some of the somethings don’t know they’re there, some of them are there but hiding, some of the somethings are deliberately hidden by other somethings, many of the somethings have no desire to communicate with anyone- including other somethings.

All of the somethings have their own ‘things’, things to think about, things to do, things to say, things to worry about, things to feel sad about, things to feel happy about.

Too many somethings. Too many things. Too many butterflies.

A butterfly jigsaw-possibly the best visual metaphor ever.

In amongst all the somethings there is a ‘nothing‘.

The nothing doesn’t want to know about the somethings, the nothing doesn’t understand why the somethings are all somethings whilst the nothing is nothing. The nothing cannot accept the somethings. The nothing wants all the somethings to go away and take all their things and butterflies with them.

The nothing cannot see that the nothing is something.

The nothing cannot see that the nothing is in fact all the somethings.

Between something and nothing there is an impasse.

I’m stuck with something, nothing and no lepidoptery skills.

I’d love for the stuckness to be as expected- stuck, stopped, I’d even settle for a pause. Mentalism is relentless, life is relentless, I somehow have to combine the two, I honestly don’t know how. The only factor of the stuckness that’s true to its etymology is that I feel trapped- in a trap that contains butterflies. A trap that releases butterflies. A trap that is a butterfly.

Read Full Post »

365 Days of Noise and a Silent ‘H’

Posted in Awesome Psychiatrist, depression, emotions, Fab Psychologist, Fantastic CPN, friends, hospital, mental illness, NHS, stickers, suicide, support, tea, Told you it wasn't like Stephen Fucking Fry, Twitter, tagged , , , , , , on December 31, 2011 | 52 Comments »

2011 has been a dreadful year, a year which has seen my mental health decline rapidly, as I sit, writing this I have little hope that the 366 days coming up in 2012 will offer me any relief from the fear, confusion, pain, sadness and chaos of my current existence. I dread each one of those 366 days and nights as I have dreaded every day and night for some time. 2011 has taught me that there are places lower than ‘rock bottom’ and places far scarier than your worst fears. I have been badly hurt, betrayed and let down this year, mainly by the medical profession but other people in my life have had a go too.

I don’t know how I’ve made it this far, I don’t know if I want to make it any further and the truth is I don’t know, I just don’t know.

Being New Year (however much denial I am in about the whole hideous event), I thought it might be appropriate to do an honours list; I checked the honours list this morning (around 4am) and was disappointed not to be included- again. In fact nobody who I thought should have been included was so I am going to right that wrong, right here, on one of the best blogs on the internet.

The Professionals


I have encountered far more than my fair share of professionals this year, not just in mental health but also the police, air-ambulance team, medical staff, social workers and paramedics.

The highest honour I can bestow, the order of the ‘sparkly, rainbow-tailed unicorn‘ must go to the obvious recipient-

The Fantastic CPN

The Fantastic CPN has continued to be an enormous source of support to me, she is at the mercy of a system that inherently appears to treat people badly but she continues to do her job and do it well. The Fantastic CPN is caring, compassionate, understanding, determined, clever and funny. She has never once made it obvious that she would just like to run away and leave me in the hands of someone else, I’m sure she’s been tempted, I’m not the easiest patient. The Fantastic CPN is representative of an army of individual, conscientious mental health professionals that are out there in our communities, doing what they can with damaged and broken people caught up in a badly broken system. I wish everybody who needs one could have someone like the Fantastic CPN but of course you can’t have the Fantastic CPN as she’s mine and I’m not very good at sharing.

The next honour, the order of ‘the sparkly box of empty promises’ goes to-

The Awesome Psychiatrist

The Awesome psychiatrist receives a mention in the honours list in recognition of his wonderful job of re-traumatising me. Whilst this was a largely horrific affair for all who experienced and witnessed it, it allowed the truth about my mental health to come out. Unfortunately the Awesome Psychiatrist will be stripped of his honour immediately as he refused to believe the truth he had helped to uncover. I still enjoyed the time I spent with him and think that should you ever be the kind of mental that fits neatly into a psychiatric box then you will struggle to find a more knowledgeable, caring, skilled gentleman to meet your needs.

The order of the ‘Schrödinger’s stickers’ goes to-

The Fab Psychologist


I don’t doubt I have presented a bit of a challenge to the Fab Psychologist this year but I am grateful that for the most part she appeared to take it in her stride in spite of the obvious challenges she faces professionally and personally. I’ll be very sorry to lose her in March and even sorrier that her blind hope I will somehow be any better by March will not come to fruition. I like to think I’ve played a part in the professional development of the Fab Psychologist, I just hope it’s not that the next time she gets someone similar in the patient raffle she runs screaming from the room.

The order of the ‘sparkly, magic, disappearing hammer intended for nailing mental jelly to a wall’ goes to-

All the mental health professionals who have assessed me under the Mental Health (Care and Treatment)(Scotland) Act and the Mental Health Act this year.


Well done all of you, you all made the right decision…….

The order of the ‘ever-present fear you will see me in the Spar and recognise me’ goes to-

The Police (both forces involved)


Thanks for tracking me down all those times, I’m less grateful for the place of safety order but I appreciate I generated a lot of work for you this year. You did your job well.

The order of the ‘it must’ve been awesome; I wish I could remember it’ goes to-

The Air-Ambulance Crew


Thank you for using your skills and valuable resources to rescue me, even though I suspect I was a little reluctant to be rescued.


The order of the ‘magical teleporting to hospital machine’ goes to-

All the paramedics I have inconvenienced this year


I think some of you saved my life, I think some of you had a wasted journey, I am grateful to you all for the work you do.

The order of the ‘itchy steri-strip’ goes to-

All the A&E staff I encountered this year


I don’t actually remember being in any A&E departments but I know I was, you all did a fantastic job, I’m sorry for taking up so much of your time.

So there are the professionals all honoured. To the mental health profession as a whole, I cannot resist awarding the order of the ‘just how much do people’s lives have to be destroyed before you do anything useful?’.

The next bit is hugely predictable for anyone who knows anything at all about me. It has to be done.

I cannot put into words the honour I would choose to bestow on the following people; your importance in my life is priceless. There are not enough rainbows and unicorns and there isn’t enough glitter in the whole world to illustrate just how much you mean to me.

All my Twitter Followers


Since the giant follower cull I have been fortunate to gather a rather small group of very important people to help me through my days. Thanks for all the hand-holding, advice, soothing, virtual cups of tea, news, virtual toast, politics, company, presents (real and virtual), letters, mental mentoring, weather reports, cards, music, care, reports from the future, understanding, acceptance and love. Thanks especially for all the laughs as we do like to laugh.

I don’t doubt for a second that it is down to you that I have made it this far.

There are less than 12 hours of this year left, I’m glad and I know many of you are too. I also know that many of you share my dread of the upcoming year.

There isn’t really anything left to say, I was going to say “I hope we can all make it through safely and that things improve for us all in 2012” but in all honesty I am out of hope and have been for some time.

We’ll just take the time-honoured approach of crossing our fingers and tweeting voraciously, see you all there.

Read Full Post »

To-Do List

Posted in 6 year old, autism, Awesome Psychiatrist, bipolar, blogging, children, communication, crying, depression, emotions, Fab Psychologist, Fantastic CPN, hospital, illness, insight, lithium, Lovely Dietitian, mania, manic, medication, mental illness, money, mother, parenting, recovery, social worker, stress, suicide, support, Wonderful GP, work, tagged , , , , , , , , on September 16, 2011 | 14 Comments »

I think this may be one of those posts on depression I talked about, I’m not sure, I’ll just write and see what happens.

It’s been a funny day- as in not at all amusing in any way shape or form and in fact nothing funny has happened so I’m not sure I can qualify that summing-up. It just feels funny. I’m sure there are many pathological explanations for this- a shift in mood state, the inevitable come-down after a period of elevation, the fact I stopped taking the dreaded lithium on Sunday night? It’s not my area of expertise so I’ll stop speculating.

I’ve had a hard week, again, nothing particularly difficult has happened (especially when you contrast this week with the past 3) and I haven’t actually done anything or been anywhere.

Monday- a social worker from the local children and families team came to carry out an assessment in light of the 3 “child at risk concerns” from the police following my behaviour over recent weeks and contact from the ninja CPN. The assessment was a gruelling affair and ultimately felt like a lynching. I had it all under control for around 45 minutes until the ninja CPN arrived (45 minutes late) and in my words “painted me as a total loony” in her words “told the truth”. Either way the assessment went on too long and I lost it towards the end, partly due to nicotine withdrawal, partly due to being talked about as though I wasn’t in the room and partly due to the social workers insistence on informing me that there may have to be a child protection investigation.

The social worker herself was patronising and clearly had little understanding of mental health. I know I’m not the best mother in the world and I know I don’t always try my hardest but to have to sit and listen to a complete stranger tell me just how badly I was failing was very difficult indeed.

Of course maybe she never implied that at all? I have noticed this week that every interaction I have had with the ninja CPN where I mention something someone else has said, she insists on me recounting it verbatim so that she can point out where I am misinterpreting things, employing magical thinking or just fabricating things. I can’t even trust my own thoughts and impressions any more. I feel stupid, childish and powerless.

I am not surprised or ashamed that my family has come to the attention of social services; I’d be more surprised if we hadn’t. My argument against their involvement is simply that they have nothing appropriate to offer. I was also more than a little annoyed that suddenly they were intruding on our lives when in all the time the 17 year old lived here and his autism wreaked heartbreak and havoc on us all they never offered a service, in spite of being asked. What my family needs in order to function properly is for me to be well- thinly veiled threats about child protection measures aren’t going to help me achieve this. The social worker wants to come back- well at least I think she does, I received a letter addressed to me and the 6 year old, making an appointment to visit the 6 year old and someone else who doesn’t even exist. Clearly just an admin error and my rage over it is no doubt my own fault for being difficult and misinterpreting things but it pissed me off anyway.

I assume the appointment is to see the 6 year old and the 14 year old again. The 14 year old is largely unimpressed with the social worker, her opening gambit of “I know it’s not easy being different, well some people like to be different- like Lady Gaga” sealed her fate with the 14 year old. The 14 year old is a wonderful creature, intelligent, engaging and probably the funniest person I know. She may be a little “old for her years” at times but she can spot a patronising bastard a mile away. I don’t disagree that the 14 year old would benefit from some emotional support, after all if I had cancer others would be falling over themselves to ensure she was ok, I’m just not sure that social services are equipped to offer her the kind of support she needs.

So the intervention of social services has me hell-bent on proving that their services are no longer required, maybe that’s the way it works?

Tuesday- the Fab Therapist visited me at home, she was impressed by my apparent fineness given the horror stories she had been told by other “team members” since our last interaction some 6 weeks ago. I don’t think we talked about much, I’m not really sure but we can’t have done as I don’t recall having a meltdown after she left. It was kind of her to circumnavigate my avoidance by visiting me at home and I expect our next appointment in 4 weeks will only have me moderately filled with dread and fear as opposed to having dread and fear seep out of every pore like usual.

This brings me to the realisation I’ve been generating this week- mental health professionals cannot make me better. I have a great “team” (that makes me want to vomit) an Awesome Psychiatrist, Fab Therapist, Wonderful GP, Lovely Dietitian, Fantastic ninja CPN and even an ok-ish community based psychiatrist (promoted from “dickhead” after he didn’t put up a fight against my discharge from the local bin last Thursday). They are all very knowledgeable, compassionate people that work very hard but there are no magic wands.

At the end of every appointment, at the end of every day, I am alone with the mental.

Part of my problem is I don’t know where I am or what I should be doing. Am I ill? Am I recovering? Am I all better now? Should I be taking it easy? Should I be trying harder? I simply don’t know. The last few weeks have been a kind of perpetual crisis and I knew what I had to do then, I had to fight, fight against the horror that is admission to the psych ward, fight against the intrinsic death that is psychotropic medication. I won both of those fights- my prize?

I’m still mental.

This evening I find myself back to struggling to find the will to live. I am aware I have very few coping strategies for times of “distress” (that also makes me want to vomit) so I’ve had a quick look on some websites to find out how other people do it. I’m still none the wiser. Yes sure I can sit here, in my corner and name all the colours I can see but that won’t help sort out the mess that is tax credits, it won’t help me be able to put up with the simultaneous noise from the TV, the DS and the 6 year old when he is here, it won’t help me be able to sit and enjoy a film and some mother-daughter bonding time with the 14 year old, it won’t get the school uniforms washed, dried and ironed in time for school on Monday, it won’t help me get back to work, it won’t pay the mortgage, it won’t cut the grass or fix the bathroom…..I could go on. When your life is a catastrophe, it’s very easy to catastrophise.

Wednesday- I have no idea what, if anything happened on Wednesday- oh yes, I wrote my last blog post and sure enough as I said in reply to one comment I am still as lost and clueless as I was when I wrote it.

Thursday- again, nothing happened that I can recall but in truth it’s therefore not impossible that there was a zombie apocalypse or a plague of sharks or something, my recall of events is sketchy at best.

Friday- AKA today. Well I think I’ve outlined above where I am today, I’m not sure even if I read it back I will have any idea. I think I’m back at the “must get a grip” stage, I have a to-do list for tomorrow- it has one item on it-

Get washed and dressed

 

In all honesty that will be a major achievement, wish me luck.

Read Full Post »

To Whom It May Concern

Posted in bipolar, communication, crying, Eating Disorder, emotions, high, insight, mania, manic, mental illness, suicide, The Fear, tagged , , , , , , , , , on September 14, 2011 | 39 Comments »

As I write it’s Wednesday 14th of September 2011, just after 8.30pm. My day has been unspectacular, especially by my own standards of late. I woke before 4,30am, on the sofa in the same clothes I had worn and slept in since Monday.

That paragraph sounds much like the beginning of one of those posts on depression I am so loathe to write, it’s not.

My mood remains “elevated” but it’s not the colouring-in, book writing elevation that we all like so much. This elevation can be fun, it gets me through the long days, the kids love “manic breakfasts” (bacon and pancakes- sometimes real sometimes imaginary), laundry gets washed and occasionally dried on the same day, I am (I like to think) funny, fun and engaging for my twitter audience. My energy levels are high and more than ever I miss my stupid car (it’s still in Newcastle) as there are so many places I want to go- usually to buy stuff- usually stationery. Mostly I just want to run away.

However this kind of elevation also brings with it a mix of anger, fear, rage, irritability, distractibility and anxiety that turns most days into a waking nightmare. I can’t concentrate on anything; basic conversation is beyond me and anything anyone says winds me up to a point I can’t hear them over the noise in my head. Writing this is a huge struggle and I’m not even sure what to say.

I am consumed with anger and rage at the slightest stimulus, be this political or personal. I get so overwhelmed by these feelings I end up going mental in some of its most basic forms- laughter, crying, a mixture of the two, fixating on rhyming words, taking risky walks in the dark alone, rocking back and forth, pacing or becoming completely immobile. All the while my thoughts are fast, jumbled and largely useless. I am easily confused and inclined to forget things, going out presents the ever-present danger of getting lost

We’ve been having the fine/ill debate regarding my mental health on twitter for some time now; for the most part I insist I am fine with fleeting moments where I confess I feel less than well. Many others have told me I’m not very well and haven’t been for sometime. I have had some advice to the contrary, the kind of advice that suggests I’m being somewhat self-indulgent and need to simply “stop” doing what I am doing. I can’t even comment on that advice right now except to say, maybe those who say that are right?

Every health professional I’ve encountered recently has gone to great lengths to tell me that they are “concerned” about me and that I am “very concerning”. This concern makes me feel guilty and I am going to extraordinary lengths to no longer be a “concern”. My attempts are superficial however and mainly involve lying about my mental health and telling people what they want to hear. I feel vindicated in doing this as I very quickly discovered “concern” never mutated into anything useful for me.

I don’t want to be a concern, I want to be fine.

I don’t think I am fine but I’m not entirely sure what to do with this revelation. I think  the part of me that surfaced over the last few weeks and tried to destroy me is on her way back (I still argue that starving my body kept her quiet) and I’m not entirely sure what to do (early signs are the drugs inventory and purchase of new razor blades). I am currently safe though it’s through conscious choice at the moment. I still don’t really know what happened over the last few weeks but I know I very quickly got to a point where I had very little say in my own safety. How do you keep yourself safe from part of yourself, a part of which you have little awareness until you see the cuts on your body or have to talk your way out of yet another MHA?

I don’t know where I’m going with this, I’ve just read it, it’s not one of my better pieces, (actually it’s shit) but it’s going up on the blog as I think it may be a cry for help whilst I am still able to do so.

Read Full Post »

Premeditated Murder- Part One

Posted in Anxiety, Awesome Psychiatrist, birthday, blogging, depression, diagnosis, duloxetine, Eating Disorder, emotions, illness, labels, lithium, mania, manic, medication, mental illness, psychiatrist, stability, suicide, tea, The Fear, Twitter, tagged , , , , , , , , , , , , on September 4, 2011 | 31 Comments »

As I mentioned in my previous post I am considering taking lithium again. This was not my idea, in fact it comes way down on my list of ideas somewhere after “stick pins in my eyes”, “swim in a crocodile infested pond”, “go to a Miranda Hart gig” “listen to Demi Lovato”, “eat offal”, “take up card making as a hobby”….you get the picture.

Lithium is the idea of my Awesome Psychiatrist, a gentleman I was very lucky to be referred to and even luckier that he found me “interesting” enough for him to continue reviewing my diagnosis (diagnoses?) and treatment. It is not surprising that in light of recent events he thinks it might be time to try and introduce some sort of chemical stability into my chaotic life.

I trust the Awesome Psychiatrists completely, I did instantly, I have no idea why, I usually make mental health professionals work very hard indeed to earn my trust. The Awesome Psychiatrist is very skilled and very experienced he is a “designated national specialist” according to one website, I’m not actually sure what this means but he’s a nice guy, very funny, gives me tea during appointments and laughs at my jokes, all good qualities as far as I’m concerned.

In spite of this I am still in a quandary over taking lithium again, for reasons I will explain, some perfectly rational, some possibly less rational but no less pertinent for me.

I have taken many psychotropic medications in the past, so many I’m not sure if I can remember them all but I will try- bearing in mind I only came to the attention of the psychiatric profession (this time around) in January 2010 this is quite a list-

Fluoxetine

Venlafaxine

Olanzapine

Quetiapine

Aripiprazole

Carbamazepine

Lithium

Agomelatine

Sodium Valproate

Duloxetine

Various benzodiazepines

Various hypnotics

I took propranolol in an attempt to counter the tremor lithium gave me- it made me almost blind

I was also once prescribed Risperidone for about 20 minutes but never took it

These drugs were in various dosages, in various combinations at various times, I stopped taking anything on the 19th of January 2011. I started taking Agomelatine on the 16th of  March and stopped taking it some 8 weeks ago for reasons that will probably soon become clear. I could write a blog post on each one and the reasons I hated it but this post is about lithium.

So I’ll start with the rational reasons I don’t want to take lithium again.

Lithium has many nasty physical side-effects; in my experience it causes agonising leg cramps, nausea, dizziness, constant fatigue, headaches, disabling whole body tremor, constant thirst, an insatiable hunger and accompanying rapid, uncontrollable weight gain. I don’t cope well with physical ailments, I tend to ignore most physical symptoms, preferring to ignore the fact I actually have a body at all. Feeling ill all the time forces me to acknowledge I have a body that is more than just somewhere to apply pyjamas. It makes me very uncomfortable. When I look back at diaries or blog posts I am reminded of just how dreadful I felt whilst taking medication. I accept I was over medicated, poorly medicated and poorly monitored but I have no confidence this won’t happen again. I would be mad to volunteer to make myself physically ill again.

Drug-induced weight-gain is tortuous, for anybody, for someone who likes to be in control of food as much as I do it’s even worse. I have managed to crawl to quite a sound footing in terms of eating disorder recovery, most days I eat three proper meals a day, snacks in between and have managed to make it through a whole month without any self-induced vomiting. No mean feat for someone who appeared hell-bent on starving herself to death a short time ago. I remember the incredible lithium hunger so well, I would be drop-down-dead starving almost all day, it never went away. I can’t help but think introducing a drug that messes with my metabolism would be self-sabotage at this stage.

Lithium is a mood-stabiliser, yes it helps prevent extremes of mood but it also has a tendency to cancel out all the ones in between as well. I functioned on lithium but I was without thoughts, ideas, feelings or reactions. I was empty; I am in danger of straying into the less rational reasons for not taking lithium so I will direct you to this post written by a much loved friend on the subject, she explains it better than I ever could.

So those are my experience-based, rational, understandable reasons for being reluctant to take lithium again. If I have the words and the courage I will try and explain the other reasons. I would appreciate anyone reading to let me know that they nodded and said “uh-huh” throughout this next bit as opposed to laughing aloud or further questioning my sanity, I have awareness that my beliefs are a little skew-whiff but this does not stop me believing them.

I often joke about being “poisoned by the medical profession” in fact during my first consultation with the Awesome Psychiatrist I made him promise not to poison me, I make it sound funny- I am deadly serious. I believe the medical profession want to poison me and make me something/somebody I am not. This belief  has some basis in fact, after my diagnosis there was a tendency to attach pathological labels to all my past behaviour. All the things I did, all the things I achieved were painted with bipolar, taken away from me, turned in to symptoms as opposed to qualities.  I believe that the psychiatric profession do not like me being who I am (or perhaps rather who I can be when not hooped-up on mentalism?) I am tempted to self-censor here as I know that what I’m about to say merely supports my diagnosis but I will go ahead. The psychiatric profession want me to be the same as everyone else, they want me to conform, be normal, be boring. I haven’t quite made up my mind if “they” (ie- everyone else other than me in the whole world) feel envious, threatened or just don’t like me, either way I know they want to drug the Zoë out of me.

The way I feel about this is paradoxical to my general feelings of self-loathing and I can’t really explain that other than perhaps by referring to that shameful symptom of bipolar- grandiosity. It is my understanding that grandiosity is a symptom of a manic state though and high or low I feel exactly the same way about lithium and exactly the same way about what “they” want to do to me. Even when I am crushingly low I would rather be dead than take lithium.

Simply thinking about taking lithium again makes me panic, it gives me the fear I shake and sweat, my heart races and I start scurrying around inside my own head. I have got as far as allowing the Awesome Psychiatrist to start the process, I am still in control, at this stage I have no intention of taking it.

I believe that in voluntarily taking those tablets I would essentially be killing a part of me. This sounds like a standard case of “missing the highs” and maybe it is, it feels much scarier and final than that though.

Lithium mutes the Zoë in me, it leaves behind a fat, trembling body inhabited by functioning parts, things get done but we don’t “do stuff” (“stuff” being a handy catch-all word to describe the stuff  Zoë does). Having re-read that (very long) sentence I am aware I am possibly making little sense, except perhaps to myself. It’s 3am I should probably stop and have a milky drink.

I don’t know what to do about this situation, I clearly cannot continue the way I am, I am just not safe- in either mood state and I accept that I am unwell (though I am willing to argue as to just how unwell I am). However I know that if I take lithium, the author of this blog will die and I suspect she’ll take the twitter account holder with her, I will still exist in some form but I won’t be living.

Read Full Post »

Older Posts »